About This Book
A parent might reach for this book when their teenager is struggling with a significant life transition, a loss of agency, or a diagnosis that threatens their future plans. It is a deeply moving exploration of identity and legacy told through the eyes of Sammie, a high-achieving student whose life is derailed by Niemann-Pick Type C. The story focuses on her determination to remain herself even as her memory and body begin to fail. While the subject matter is heavy, the book serves as a powerful tool for discussing resilience and the inherent value of a life regardless of its length. It is most appropriate for mature teens aged 14 and up who are ready to engage with realistic, secular depictions of chronic illness and the grieving process. Parents will find it provides a safe space to discuss the fear of the unknown and the importance of documenting one's own story.
